Member Organization Details

LIVING FOR THE CURE

In July 1996, with the direction, guidance and compassion of many caring individuals, Lindey and David McIntyre established the Bethanys Hope Foundation with the purpose of developing fundraising mechanisms that could help support imperative Research. It was soon realized that a Canadian driven initiative would be required to ensure a seamless transition of fundraising dollars from our Foundation to a team of Researchers.  Under the direction of Dr. Tony Rupar, in conjunction with Western University, the Bethanys Hope Leukodystrophy Research Laboratory was established in November 1999 in London, Ontario, Canada.  We are proud of the medical breakthroughs that are being made in this world class Laboratory, including the perspective of clinical trials for a MLD treatment in the near future.  Our Foundation has fought tirelessly to ensure that the faces and names of those suffering from the devastation of MLD are not forgotten, but instead given a voice of hope and dignity. To date, the Bethanys Hope Foundation – with the help of our dedicated partners and numerous volunteers – has raised over $4 Million for Research.  It is a continued battle to ensure that rare diseases – such as MLD – are not forgotten or dismissed, but instead brought to the forefront.  Under our current strategic plan the pivotal answers required to ensure this devastating disease is brought to a timely end are imminent.   With your help history will be made!  Join us today and be a part of the Team that will help bring an end to MLD and also provide insight into treatment options for many other correlating rare diseases.